Our independent analysis of the clinical trials’ published data yields the following insights on gene therapy for hearing loss from otoferlin variants. The clinical trials provide the first validation of pharmacological treatments for hearing loss.
To Me, I Am the Lucky One
I knew how uncomfortable deafness could make people. What I hadn’t expected were some of the reactions my hearing aids got. To me, the hearing aids were life-changing. To me, I was the lucky one.
Auracast Update
Because Auracast is part of Bluetooth, there's no extra tech needed to include it in a product. That said, since hearing aids last several years, the transition to most being Auracast-capable will take time.
Changes in the Brain with Age and Hearing Loss
A better understanding of how our brains process patterns with aging and hearing loss, and when neural responses are exaggerated versus diminished, can aid in developing treatments and devices to improve age- and hearing loss-related hearing difficulties.
Are There Benefits to Hearing Loss?
Once I realized that hearing loss isn’t anything to be ashamed of, little by little, I started to speak up for myself. The more I did, the more confident I felt. This confidence has reached all areas of my life.
Telecoil Plus Bluetooth, Please
We need both Bluetooth and telecoils in our hearing devices to take advantage of all the hearing situations we encounter so that sound can reach our ears, with clarity.
Why I Love Both My Hearing Aids
I am so grateful to be able to hear again. The use of two new hearing aids helped my brain to better coordinate sounds, and when I wear these new aids the annoying tinnitus is barely noticeable!
I Looked Like Me
For the first time I feel my designs actually have a deeper meaning. The work I do is not superficial. It has a deeper function: to change the lifestyles of hard of hearing people and to normalize hearing problems.
Recruiting for a Gene Therapy Trial
Right now we are actively recruiting volunteers with hearing loss to participate in an outpatient research study to understand the genes that cause non-syndromic autosomal dominant hearing loss (DFNA).
Continuing to Make Connections
I’ve been able to still send used cochlear implant processors from Australia to Iran. I have great friends and a lovely network that reaches kids in rural areas and even adults, people who have no support other than the kindness and compassion in other people.