Summer Is a Time for Play (and Protection)

By Morgan Leppla

“The best offense is one that does not trigger any defense,” says Daniel Gilbert, Ph.D., a psychology professor at Harvard University.

Gilbert says humans are not hardwired to think long term. When people don’t see a threat as immediate, they are not inclined to take action to mitigate it. This psychological phenomenon is why it’s easy to forego protective measures that’ll make a difference in the long run, especially during one of the most fun-filled times of the year: SUMMER!

With its blaring tunes and crackling fireworks, it makes sense that summer excitement distracts us from remembering the permanent effect of noise on our ears. Loud sounds are more insidious than one might expect. This is in spite of the fact that noise-induced hearing loss (NIHL) can happen at any age, to any race, gender, etc. Hearing loss from all causes is a growing epidemic, affecting nearly 50 million Americans.

Sound volume, length of time listening, and repeated exposure to loudness all can lead to NIHL. One extremely loud sound can cause it, but so can exposure to softer (but still dangerous) sounds over an extended period. To put that into tangible terms, a single loud sound may be a shotgun going off right next to you, while sounds that may damage hearing more slowly are repeated exposure to heavy city traffic, music listened to at a high volume using earbuds, or even regular use of a hairdryer!

So, with all of these potential threats to hearing, what is there to do?

Here is the trinity of protection: WALK away from loud sounds, BLOCK loud sounds with ear protection, and TURN the volume down (when you can control it). These simple actions can have a major impact on your long-term hearing health.

HHF Achieves Accreditation From BBB Wise Giving Alliance

By Morgan Leppla

Accountable, transparent, responsive, and enterprising. 

It takes a resolute organization to embody these traits. While we believe that has been the case since Hearing Health Foundation’s inception in 1958, we now have Better Business Bureau Wise Giving Alliance (BBB WGA) accreditation to prove it!

The BBB WGA evaluates charities based off of 20 holistic standards that include scrutinizing financial transparency and planning, internal governance, effectiveness measurements, and fundraising disclosure practices and accuracy. Check out our profile at Give.org today!

We also recently received a Platinum rating from Guidestar, which is the highest rating available. This rating signifies that HHF yields measurable results using self-defined metrics that reveal much more than oversimplified financial ratios.

But why should this matter to you?

Because these 3rd party ratings show we achieve our mission, responsibly!  

“The public can be assured that every charity evaluation is completed with careful, objective analysis of charity information,” says Art Taylor, president and CEO of the BBB Wise Giving Alliance. “

The more we become deserving of your trust, the better the prospects for curing and preventing hearing loss and tinnitus. More than 80 cents of every dollar goes to funding programs and research, meaning we have the capacity to to enact the changes we promise.

While the BBB seal of approval verifies the standards of our operating procedures described above, our commitment to quality is motivated by a much greater force. It is traceable to our mission and core values, which structure the ways we act and choices we make. Accountability to our constituents and stakeholders is crucial to upstanding practices, and without it we would not be HHF. 

Please consider making a gift today so we can continue to carry out our mission and find a cure for hearing loss and tinnitus. 

YOU ARE OUR HOPE.

Sounds like Meniere's Disease

By Haley Walker

Haley getting hearing aid mold impressions

“Looks like you have Ménière’s disease,” my doctor said. My heart skipped a beat. What does that mean? What on earth is that? Over the next couple of months I had various hearing tests done, and met with an ear, nose, and throat doctor. It was a lot to take in.

At first I was just glad to have an answer to my problems. A name, a label, an explanation—and to know I am not going crazy. But after that I began to feel worried. Ultimately my diagnosis meant progressive hearing loss; not only did I need hearing aids for moderate hearing loss, my hearing could get worse.

Ménière’s also means I have to follow a low-salt diet. I can’t eat more than 1.5 grams a day of sodium. That’s about a third of a teaspoon. No fast food, no processed food, no added salt.

Ménière’s disease is a disorder that causes abnormal fluid retention in the inner ear, leading to balance problems, hearing loss, and tinnitus (ringing in the ears). Typically, it only affects one ear but lucky me—I have it in both. My doctor was very surprised and said it's quite rare, but as I researched the condition I found a lot of people have it in both ears. That made me feel a bit better.

The truth is it took over a year to finally get this diagnosis of Ménière’s. If I really think about it, I started having disabling dizzy spells that caused vomiting and nausea when I was in high school, at age 16 or 17. (I am 20 now.) My family and I wrote them off as anxiety attacks and dealt with them as they came.

I remember trying to walk home up a hill behind the school one day and literally falling on my face because I couldn’t walk straight. Mmmmm dirt… yummy. I stumbled home and laid down on the floor in our living room crying. I couldn’t get a grip on myself. What is happening to me? Anxiety definitely played a part, but I now know there was a more pieces to the puzzle.

I am now treating Ménière’s by following my low-sodium diet, wearing my hearing aids, and taking a diuretic—a medication that helps to control the abnormal fluid retention in my ears. (This is why limiting salt also helps—salt makes you retain water.) It was incredible when I first got my hearing aids. Everything I had been missing I could suddenly hear! I now can enjoy the little things like the birds singing outside my window in the morning. When the tinnitus gets really bad I put on background white noise, like the sound of the ocean or rain falling. And when the dizzy spells hit, I do the only thing I really can, sit or lay down, and close my eyes waiting for it to pass.

Haley and her hearing aid

If you or someone you love has been diagnosed with Ménière’s, don’t worry—it's not the end of the world! You learn to cope and manage your flare-ups, and hearing aids are amazing. I cried tears of joy the first time I listened to music after I got them.

The important thing to remember is that you aren’t alone! There are others out there with Ménière’s. Join a group on Facebook or start your own. Talking to others who understand what it's like and what you are going through helps so much. Look at celebrities, like Katie Leclerc, who are dealing with it every day and rocking it.

And lastly, take care of yourself. On bad days, pace yourself and do what you need to do to feel better. Always remember, “This too shall pass.”

Walk, Block, and Turn!

By Maggie Niu

April 27 is International Noise Awareness Day (INAD), a day dedicated to encouraging people to “do something about bothersome noise where they work, live, and play.”

Every day in our environment we experience sound, whether it’s pleasant, like music, or bothersome, like sirens. Unpleasant or unwanted noisy environments can be dreadful; not only can noise increase our stress level and inhibit us from carrying out daily tasks, but also in the long run overexposure to noise can damage our hearing. This is known as noise-induced hearing loss (NIHL). All too often, we become immune to the constant hum of traffic (about 85 decibels, or dB) and noisy subway stations (95 dB). The Safe and Sound safe listening levels chart, on the left, details the effects of various decibel levels on our ears.

There are two causes of NIHL. One is impulse noise, a one-time exposure to a loud sound such as an explosion. This can cause temporary and/or permanent hearing loss. The other cause of NIHL is continuous exposure to loud noise. This type of hearing loss happens gradually over time.

NIHL affects our inner-ear hair cells (the cells that help us hear) as well as the auditory or hearing nerve. Not only can this type of hearing loss be permanent, it can also lead to tinnitus. Tinnitus is hearing a constant ringing, buzzing, or roaring without an external sound source. It can be in one or both ears and often occurs with hearing loss.

Now the question is: How do we protect ourselves from NIHL? It can be as easy as remembering to Walk, Block, and Turn! Walk away from loud sounds. Block noise by wearing earplugs or other hearing protective devices. Turn the volume down on stereos and personal music devices. If you work in a noisy environment, take proper measures to protect your ears by wearing ear plugs or ear muffs. Being able to hear is important for daily interactions and often taken for granted until it's too late.

To learn more about Hearing Health Foundation's Safe and Sound program, please email development@hhf.org.

10 Signs and Symptoms of Ménière's Disease

By Catherine Roberts

According to the Mayo Clinic, Ménière's Disease affects the inner ear and causes bouts of vertigo due to fluid that fills the tubes of your inner ear. On top of the dizziness and nausea, flare ups can also cause some loss of hearing in one or both ears and a constant ringing sound. You might not be able to drive, work, or do regular daily activities at times, though this chronic condition varies greatly from person to person. Unfortunately, the disease is not curable, but there are many treatment options that successfully help manage the disease.

Keep an eye out for these ten signs and symptoms of Ménière's Disease, and see your doctor if you experience any of them…

1. Dizziness
   Dizziness can be caused by a lot of different diseases and infections, but it’s one of the main symptoms associated with Ménière's disease. Your inner ear is responsible for your balance and since the disease attacks the tubes in your inner ear, dizziness is bound to occur when experiencing a flare up of the disease. If you experience dizziness as a result of an attack of Ménière's disease, it may cause you to unsteady on your feet and feel like the world is moving unsteadily around you. In severe cases, dizziness can make you fall over or trip while walking, making it dangerous to be driving, working, or even simply walking.
   
   

2. Nausea
   Nausea is another common symptom. Feeling sick to your stomach and actually vomiting can easily occur when you’re experiencing severe dizziness as well. When attacks of the disease come on, symptoms of vertigo are felt for as little as half an hour to as long as a full 24 hours. Though these attacks are seemingly short-lived, nausea and other symptoms can be felt strongly during the whole flare up. Although a symptom like nausea is extremely inconvenient and unpleasant to deal with, there are over-the-counter medications for motion sickness and prescription anti-nausea medications that your doctor can provide that could greatly help manage the attack. There are also some antibiotics that can be injected into the ear to help relieve symptoms if necessary.
   
   

3. Hearing Loss
   Though usually temporary and in one ear, permanent hearing loss happen to some over time. Many patients describe the hearing loss as if their ear is plugged—sound can seem distorted, fuzzy, far away, or even tinny. Sensitivity to sound is also common, and finding a way to successfully remove the fluid helps improve any hearing problems the patient suffers from.
   
   

4. Ringing In the Ear (Tinnitus)
   According to the Mayo Clinic, Ménière's disease can cause tinnitus, unfortunate sounds in the ear described as ringing, hissing, roaring, buzzing or whistling. Since the disease affects people in different ways and with varying symptoms, some patients may experience tinnitus without vertigo and hearing loss, or a combination of several symptoms. While not painful, any sort of foreign sound like ringing in the ear can be really difficult to cope with.
   
   

5. Uncontrolled Eye Movements
   Some people who have the disease experience a sort of jerky eye movement in one or both eyes, side to side, up and down, or in a circular motion. It varies depending on the patient and each attack. The inner ear directly affects balance, and in turn, the movement of your eyes. Tests are done to check the response of your eyes when your inner ear balance is changed.
   
   

6. Diarrhea
   Those who experience diarrhea might be more likely to also be experiencing vertigo during the same attack. To make matters worse, diarrhea can continue to occur after flare ups, not just during them. This makes it very important for you to stay hydrated when you’re struggling to cope with these symptoms of Ménière's disease. Since vertigo can cause you to throw up, the combination of vomiting and diarrhea will make you extremely dehydrated, and cause other health problems if not corrected. Along with diarrhea, abdominal pain and other gastrointestinal discomfort is possible.
   
   

7. Cold Sweats
   When in the middle of an attack, people who experience vertigo symptoms—nausea, dizziness, and even vomiting—could also develop cold sweats, adding another uncomfortable symptom to deal with. Since cold sweats are typically a result of vertigo in the case of Ménière's disease, vertigo medication could eliminate or greatly reduce this and other vertigo symptoms. Depending on how severe your episodes are, your doctor may prescribe an anti-nausea medication to reduce the harmful symptoms of the attacks.
   
   

8. Feelings of Fatigue
   It’s thought that those with Ménière's disease are more sensitive or susceptible to fatigue, increasing the risk of falling prey to an attack. Some patients have also shown that fatigue could be what causes flare ups, so people with the disease should adjust their lifestyle as needed to reduce the risk of becoming too tired. Work on sleeping well and not over-working or over-extending your capabilities.
   
   

9. Extreme Mood Changes
   People with Ménière's disease have claimed feeling a variety of changes in their mood both during episodes and in-between them, from anger and irritability to anxiety and fear. These mood swings and feelings of instability can be caused by many things, so they aren’t necessarily from Ménière's disease. It’s also worth it to note that mood changes and roller coaster-type feelings aren’t necessarily a physical reaction from the disease—the Mayo Clinic explains that it’s currently unknown if anxiety contributes to and causes episodes or if anxiety is a by-product of the disease, occurring after attacks.
   
   

10. Migraines
    A sign of Ménière's disease that’s easy to overlook are severe headaches, specifically migraines. There are so many dietary and lifestyle causes of migraines that it’s no wonder this sign can be overlooked. That said, once you really think about the disease and what it attacks, it’s not so hard to see the connection. It’s thought that migraines can cause damage to the inner ear, and those with Ménière's disease are more likely to get migraines during flare ups.

Excerpts of this article was repurposed with permission of the author and originally appeared on activebeat.com January 23, 2016.

Promoting Research to Improve Hearing Health - Seven Questions - ARMY Magazine - Dec 2015

Promoting Research to Improve Hearing Health

ClaireSchultzistheCEOofHearing Health Foundation (HHF), a 501(c)(3) tax- exempt organization committed to ensuring the public—especially service members, veterans and their families—have the opportunity to enjoy life without hearingloss and tinnitus.

1. What is Hearing Health Foundation’s mission?
   
   HHF’s mission is to prevent and cure hearing loss and tinnitus through groundbreaking research, and to promotehearing health. Through our Hearing Restoration Project, we are working on a biological cure for hearing loss and tinnitus for millions of Americans—including hundreds of thousands of military service members and veterans.
   

2. What military-specific initiatives has HHF worked on?
   
   In 2012, we joined the DoD’s Hearing Center of Excellence as a partner through general outreach, radio programs and co-authored articles. We share many of the same goals in raising awareness, providing resources and information, and continually improving the health and quality of life of service members and veterans.
   
   In 2014, HHF launched an online campaign geared toward veterans to provide information and resources about tinnitus treatments and the Hearing Restoration Project’s efforts, and including links to expert content in our magazine and to other hearing and veteran-related organizations and associations. [Visit http://hearinghealthfoundation.org/veterans.]
   
   Pharmaceutical intervention for hearing loss is a major research area for the military.
   

3. Some military members feel hesitant about seeking treatment for hearing-related issues. What does HHF do to mitigate that stigma?
   
   Service members may feel stigmatized about seeking treatment for their hearing problems because there are many myths and misconceptions about people with hearing loss. At HHF, we provide factual information as well as resources to help reduce the stigma of hearing loss, and to encourage getting treatment as soon as possible.
   

4. Do many service members regard hearing loss as a “badge of honor”?
   
   HHF has not heard this sentiment, but it is our hope that members of the military take every effort to prevent hearing loss while in the service, and to address any hearing issues they may have developed as soon as they are discovered. Untreated hearing loss can lead to many additional medical problems; for example, depression, isolation and dementia.
   

5. Are more Iraq and Afghanistan veterans seeking hearing loss treatment?
   
   At least 60 percent of troops returning from Iraq and Afghanistanhave acquired hearing loss or tinnitus because of noise exposure during their service. According to the Hearing Center of Excellence, in the past decade, 840,000 service members have been diagnosed with tinnitus, and just over 700,000 have hearing loss.
   

6. What are the most effective treatment options?
   
   Current treatments include hearing aids, cochlear implants and other devices. Treatments available for tinnitus include sound therapy, drug therapy, psychological interventions, brain stimulation and tinnitus retraining therapy, which is being tested through clinical trials at six flagship military treatment centers.
   
   A sequential program known as progressive tinnitus management has emerged as one of the most promising research-based methods. In order to help patients, it is necessary to mitigate the functional effects of tinnitus, such as difficulties with sleep, concentration and relaxation.
   

7. How can service members prevent hearing loss?

Traditional earplugs are effective in preventing hazardous noise from entering the ear canal, but they can interfere with speech communication or low-level combat sounds. Level-dependent earplugs have a small filter that enables soft noises to be conveyed with full strength while eliminating high-frequency or impulse noise.

Earmuffs are another option. … They provide greater attenuation than earplugs [but] make it harder to pick up the softer sounds that may be necessary for verbal communication. An electronic communication system in the earmuff allows wearers to communicate clearly with each other.

Noise-attenuating helmets should be used by military personnel operating combat vehicles or aircraft. These helmets protect the wearer from hearing loss, crash impact and eye injuries while also increasing communication ability through a radio communication piece.
Technologically advanced helmets include an active noise-reducing technology that monitors the sound energy around the ear and cancels any unwanted noise while preserving verbal communications. A communications earplug with a microphone can be worn in addition to the helmet for high-quality verbal clarity.

—Thomas B. Spincic

Fly

By Chill Kechil

Chill Kechil is a Les Paul Ambassador, helping to educate musicians and others about the risks of noise-induced hearing loss and tinnitus. The New Jersey-based DJ and composer recently released two versions of a song, “Fly,” featuring vocals by Shakila Azhar, in addition to two holiday songs. He is donating a portion of their sales to Hearing Health Foundation. 

As a person with hearing loss, he has made adjustments in order to compose and perform. Here, he talks about the genesis for the songs and what he likes in music.

My latest collaboration is with Shakila Azhar. She is a singer who lives in Singapore, and she happens to be my wife’s cousin. She flies in airplanes for a living and sings at her company’s events. My wife told me Shakila has a killer voice, so when I finally met her we talked about doing a song together. 

Through this song I wanted to capture the spirit of flying, along with her soulful vocals. We recorded “Fly” over a few hours, when she had a stopover in New York City, but I’ll admit it took me almost a year to finish the production.  I hadn’t worked with live vocals before, and I wanted it to be perfect so I really took my time about getting it right. I was also using a new version of my music production software. Shakila’s improvised vocals and lyrics added real soul to the song. 

There are two versions available, a dance version, and a deep house version. I realize now that there could be a connection between my high frequency hearing loss, making it hard to hear higher pitches, and my love for deep house music, which has heavy kick drum beats and a deep bass line. Actually it’s funny, but the idea for the bass line in the deep house version of “Fly” came about while I was doing a holiday song based on Tchaikovsky’s “Dance of the Sugar Plum Fairy” from “The Nutcracker.” 

But it’s not just the deep sounds that I like in my music. The tune should be very melodic. I like women’s vocals floating over the top, and instead of typical three note chords, I like to use four or five notes in each chord like in jazz music (another of my favorite genres). House music combines all of these things—deep sounds, melodic vocals, and rich chords. The software just changes the entire production of a song, letting me visualize the notes and chords while composing. It brings hundreds of instruments to my fingertips.   

When it comes to curating songs for internet radio stations or creating a DJ set, most have kind of a danceable beat. My preferences are really chill, lounge beats and house music that can flow smoothly together from one song to the next. You can say I live up to my Chill Kechil name because most of the songs I produce or play have this chill, danceable beat to them.

Protecting my hearing by covering my ears is always a priority. The headphones I wear for DJing have to isolate the sound from the mixer while also protecting my ears from the ambient sound and noise. This way, I don’t have to turn the volume up as much when I’m mixing a DJ set. The headphones make the bass sound warmer, while reducing the higher frequencies that can hurt the ears and lead to ear fatigue. I always try to be careful by allowing my ears to rest at least a week between DJ gigs, and to check my smartphone’s decibel meter for loudness when catching other DJ or music acts. And, of course it goes without saying... I always have my earplugs handy.

He DJs regularly at Skinny Bar & Lounge on the Lower East Side of Manhattan. Look for him on open turntable nights. Read more about Chill Kechil and his music in Hearing Health's Spring 2015 article here.

Chill Kechil believes in the mission of HHF and its search for a cure for
hearing lossand tinnitus. He is donating a portion of sales of “Fly" and the
holiday songs “Dance of the Sugar Plum Fairy" and “Carol of the Bells” to HHF.
Visit chillkechil.com to listen to samples and purchase.

Meet the Researcher: Noah R. Druckenbrod, Ph.D.

MEET THE RESEARCHER

NAME:

Noah R. Druckenbrod, Ph.D.
Harvard University

BIO:

Druckenbrod received a Ph.D. in Cellular Biology and Neurobiology at the University of Wisconsin, Madison, and is now a postdoctoral fellow in the department of neurobiology at Harvard Medical School, Boston. A 2015 Emerging Research Grant scientist, he is the recipient of The Todd M. Bader Research Grant of The Barbara Epstein Foundation, Inc.

IN HIS WORDS:

The mature cochlea is a spiraled hollow chamber of bone, nestled next to the brain, that contains all the necessary components to transmit sound information to the brain.

This feat is accomplished through the organization of inner ear hair cells and spiral ganglion neurons (SGNs). Nerve cell fibers (axons) must transmit electrochemical information from the hair cells through precise synaptic connections whose arrangement is established in the fetus.

Surrounding almost all nerves are glial cells that are classically thought to support neuron health. Our early data and evidence from other studies lead us to hypothesize that how nerve cells interact with the glial tissue plays a major role in how signals guide nerve fibers through the three-dimensional terrain of the cochlea.

For example, glial cells and neurons not only attract one another but they also send signals back and forth to instruct one another’s cellular properties and behaviors. I am focusing on a glial cell type called Schwann cells.

Aspects of this research relate to cancer—and, relatedly, tinnitus. Schwann cell tumors, called schwannomas, are among the most common nervous system tumors in humans, and the most common tumors in the skull are schwannomas of the inner ear. As these tumors grow they compress vestibular and auditory nerves, usually causing hearing loss, tinnitus, and dizziness.

A fascinating property of Schwann cells is that they will begin to divide if they are not in contact with neurons. And a hallmark of inner ear schwannomas is that they appear to fail to interact with SGN axons. Therefore, the fetal cochlea offers a unique opportunity to better understand how auditory circuitry develops as well as how it can be disrupted by disease.

The thrill of discovery and figuring out the unknown has always inspired me. After some time enjoying all the sciences I became most interested in biology and health.

The first experiment of mine I can remember was in third grade for a science fair. At the time I was very interested in optical illusions and thought that left- and right-handed people may report seeing different images in a specific type of illusion. In this case I discovered that experiments don’t always work as planned! The results of the experiment were unclear because I couldn’t find enough left-handed people in my school.

You may have heard of “Ancient Aliens,” a funny show on the History Channel. About three years ago, as a favor to one of the producers I’d met, I appeared on a couple of episodes. It was a fun experience—but I was sure to make no scientifically dubious statements, unlike some of their other experts!

A 2015 Emerging Research Grant scientist, Noah R. Druckenbrod, Ph.D., grant was generously funded by The Barbara Epstein Foundation, Inc. To join Hearing Health Foundation in funding the innovative, groundbreaking work of emerging hearing and balance researchers, please see hhf.org/name-a-grant.

Do You Hear That?

By Kailey McGarvey

Do you hear that?

Imagine hearing a high-pitched noise, constantly, throughout the day and night. It follows you everywhere. Silence is a luxury that does not exist.

This is tinnitus.

In 2011, I developed tinnitus in my right ear, after a head cold. I vaguely noticed it, and thought it was something that would go away after my body had fully recovered. After a few months, my doctor told me I was completely healthy. But why was I still hearing that annoying sound?

At this point, the ringing in my ear was so faint that I could only hear it in complete silence. It was just a mere annoyance that could be easily covered up by any other sound, so I didn’t take it too seriously. I had some ENT and neurological tests done just to be sure that the tinnitus wasn’t a symptom for something bigger, which it wasn’t. So it was never more than a mild concern—until I woke up one morning in 2013 with an even higher pitch ringing in my left ear.

This was solid proof that something was happening and that it had the potential to worsen. I went through a second round of ENT and neurological testing to check for new developments. The ringing had become louder and took more effort to ignore. Again, the tests showed nothing abnormal. This was good, but I was told nothing could be done about the distracting sounds in my ears.

My tinnitus began to consume a greater amount of my focus, my energy, and my thoughts. My anxiety skyrocketed with thoughts of how it could progress and what it would mean for me in the future.

During the summer of 2015, my tinnitus worsened, again. Listening to music is one of my favorite pastimes, but now I hear sounds of high-pitched feedback during certain chords in songs. This is particularly devastating—my tinnitus has distorted how I hear music. It was then that I made a decision: Since throwing my energy into finding answers from doctors was obviously not proving productive, what would be a better outlet?

After some brainstorming, I decided that my “outlet” would be fundraising for tinnitus. I have always been involved in community outreach, and have been working as a finance assistant for a congressman. This would be my opportunity to manage my own fundraiser, while raising funds for a cause very important to me. With my recent move to Long Beach, New York, I had access to a beautiful boardwalk. I decided the fundraiser would start in my back yard with snacks and drinks, and once everyone arrived we would walk the boardwalk.

I chose Hearing Health Foundation (HHF) because their focus is on research. Research is where we will find answers about hearing loss and tinnitus; research is what will move things along. We are so close to finding answers. Since tinnitus is an invisible condition and it does not directly affect your health, it has historically not been taken seriously, but it is (slowly) becoming a “mainstream” condition. I hope this will lead to more people taking an interest in funding tinnitus-focused research, such as the science that HHF is funding. Greater funding will help accelerate the pace toward a cure.

I was lucky—the Saturday of the fundraiser was a beautiful and warm October afternoon. I had set a goal of $1,000 and asked for $35 per person. Those who couldn’t make the fundraiser were asked to donate online. I ended up with 23 people in attendance and $1,120 in contributions. It ended up just being a fun social gathering of family and friends. Dollars for Decibels was a success! Not only was I able to raise money for the organization, but the fundraiser itself reinforced the extraordinary support system I am grateful to have around me.

In addition to fundraising, I can also use my time to educate others and help the tinnitus community as a whole, rather than just trying to find answers for myself. It is important to educate the younger generation about the harmfulness of noise. Hearing conditions and hearing loss are seen as “problems for old people”—but this simply isn’t true. Hearing loss and tinnitus can begin at a young age and when the cause is excessive noise, it is entirely preventable. I was just 20 when my hearing became noticeably affected.

It is tempting to search endlessly for some sort of miracle drug, or to feel discouraged when nothing seems to work. But remember that everybody has some issue, and if (loud) ringing in your ears is your biggest problem, perhaps you are lucky. There is no operation or amount of medicine that can provide the same relief as the support and love of friends and family.

The outreach and education among my friends is working. Just last week, one friend decided that we shouldn’t go to a certain bar because it is always “way too loud.”

Tinnitus and hearing loss can be debilitating. Still, as with all chronic conditions, there are good days and there are bad days, but there are always good days ahead.

Interested in hosting a fundraising event to benefit HHF?  

You're in luck! You can create a  giving page and help us raise funds to cure hearing loss and tinnitus.

Need some ideas?  See examples of past events and ideas for creating an event. There are many different ways to create your own fundraising event from golf outings and bake sales, to birthdays and weddings, to marathons and triathlons. Let your talents and interests lead you to your own fundraiser for HHF! No event is too large or small.

In three easy steps, you will be on your way:

1. Register

2. Create your Giving Page

3. Share with Family and Friends and ask for their support

Get Started!

Have questions or need help setting up your fundraiser?  Email fundraise@hhf.org or call (212) 257-6140.

Unlocking the Potential for Hair Cell Regeneration

By Laura Friedman

On November 5, 2015, Hearing Health Foundation hosted its second live-video research briefing as part of our effort to provide regular updates on our research programs and progress. Through these briefings, our goal is for our attendees to obtain new information and understanding about hearing loss, prevention and research toward a cure.

Dr. Andy Groves, Hearing Restoration Project consortium member, presented recent research advances and new discoveries, the use of new technology, and our future plans to prevent and cure hearing loss and tinnitus. The HRP was founded in 2011 and is the first and only international research consortium focused on investigating hair cell regeneration as a cure for hearing loss and tinnitus. The overarching principle of the consortium is collaboration: open sharing of data and ideas. The HRP consortium consists of 13 of the top investigators in the audiological space, as well as a scientific director, Dr. Barr-Gillespie.

We wanted to share with you highlights from the presentation, which is available to watch with live captioning or to read with notes summarizing each slide.

Your Support Is Needed!

Hair cell regeneration is a plausible goal for eventual treatment of hearing and balance disorders. 

The question is not if we will regenerate hair cells in humans, but when.  

However, we need your support to continue this vital research and find a cure! Please make your gift today.