Summers With HHF Are Well Spent

By Morgan Leppla

Last December, I realized I would need something to do for the summer after my freshman year of college. I knew I wanted to end up in a city and work with nonprofits, so I put out feelers for internships in San Francisco, D.C., and New York City.

A friend of Hearing Health Foundation (HHF) put me in touch with Laura Friedman, HHF’s communications and programs manager, who I interviewed with earlier this year. It went well (clearly, I’m here), and to my delight, on the same phone call she offered me an internship at HHF.

I had a few offers from other organizations but Laura told me that HHF would be dedicated to ensuring I would have a fruitful internship experience. And on the last day, I can corroborate her initial promise.

Before I started my internship, my knowledge of hearing health was both sparse and vague. I knew little about research conducted on hearing loss and related disorders, and I assumed my internship would be spent monitoring HHF’s Twitter and Facebook accounts and photocopying, while occasionally eavesdropping in on conversations otherwise too important for my ears.

After 12 weeks of actually writing blogs (many thanks to people reading them!) and, for the Fall issue, magazine articles, plus researching statistics and talking and working with people who care about HHF’s mission, I now have a plethora of hearing-related facts I intend to regale classmates with at (not-too-loud) parties for years to come.

For those who don’t know, HHF’s full-time staff includes four people, with three part-time freelancers—so while they are small, this is a talented and efficient group! The CEO, Nadine Dehgan, will stuff appeal envelopes with me and anyone else in a staff meeting just to get it done. HHF employees may not be the scientists discovering breakthroughs, but the energy, labor, and hours behind collecting enough dollars to sustain the organization and fund life-changing grants surely accumulate into something with a recognizably valuable shape. To witness such unwavering commitment is striking.

I am not trying to hide my partiality for HHF, I think that much is clear. It’s true Laura has tried to infuse my experience with purpose, so I am of course grateful for that. And if you’ve been keeping track, I’ve hit a few of those buzzwords (unwavering, life-changing, meaningful, etc.) you might find usually overstate the point or are overused to meaninglessness, but this time I don’t think I’ve fallen into that trap.

It’s not that often that you (that is, people who consume media online) are allowed to peer into an organization’s foundation, for the cloak of professionalism is mighty. But hopefully I’ve brought to your attention the quality and dedication I have witnessed firsthand today and every day here at HHF.  

I leave my summer internship with appreciation and admiration and the hope that HHF will prosper for years to come!

And, of course, if it within your bandwidth, please donate to make sure this happens!

Brain and Alzheimer's Disease Awareness Month

By Morgan Leppla

Bodies are complex systems, composed of many minute details. The human anatomy serves to remind us of the intricacies of our world. This June for Brain and Alzheimer’s Awareness Month, Hearing Health Foundation (HHF) invites you to join us in celebrating one of the most mysterious and fascinating part of the body: the brain.

For one to grasp the physiological complexity of being  human, one ought to understand how their body’s many systems work in tandem. For example, each person’s brain depends on stimulation to keep it in tip-top shape and and their bodies depend on their brains to function as they are intended to.

This is clearly a stripped down explanation of the role brains play. Of course an organism’s structure can be broken down into smaller and smaller parts, so let’s focus on one of special importance to us here at HHF, hearing.

Frank Lin, M.D., Ph.D., from Johns Hopkins University reports in 2014 that hearing loss affects brain structure, and specifically accelerates brain tissue loss. The study was conducted over a 10-year period with a sampling of people which included those with substantial hearing loss and those with normal hearing.  After analyzing years of magnetic resonance imaging scans, his conclusions suggest people with substantial hearing loss show higher rates of brain atrophy. Lin explains brain shrinkage could be the result of an “‘impoverished’ auditory cortex” since there is reduced brain stimulation in that area.

"If you want to address hearing loss well," Lin says, "you want to do it sooner rather than later. If hearing loss is potentially contributing to these differences we're seeing on an MRI, you want to treat it before these brain structural changes take place."

The human brain contains some of the most challenging biological mysteries in science (and always has). Unlocking those takes perseverance, so HHF thanks brain and hearing researchers for the time and energy devoted to rigorous research and ultimately revealing information critical to improving brain health.

Parts really do affect the health of the whole. So for the brain and beyond, please make an appointment with your hearing healthcare professional for your annual checkup and, if you are diagnosed with a hearing loss, managing it. More than just your hearing will benefit! Untreated hearing loss has been linked to dementia, depression, diabetes, falls, and heart disease.

Want to learn more about brain health? Check out last year’s blog here: Your Brain Is a Muscle: Use It or Lose It

HHF's FY'15 Annual Report: Read It Now

By Morgan Leppla

Hearing Health Foundation (HHF) is pleased to announce that our 2015 annual report is now available. From the latest hearing research to how we have worked to fulfill our mission, the report is a comprehensive look at our programs, events, and activities for fiscal year 2015 (Oct 1, 2014 - Sept 30, 2015).

In the report, we review HHF’s progress, talk to supporters, and decode the financials. Here are some highlights:

• Check out the incredible supporters who ran, hiked, and hosted events all to benefit HHF’s mission!

• HHF’s Hearing Restoration Project (HRP) consortium of researchers made notable strides in hearing and tinnitus research. In 2015, the HRP designed a model to test candidate hair cells for regeneration in deafened adult mice, and that’s only a fraction of the story.

  • HRP researchers like Andy Groves, Ph.D., thank you. “Federal funding for biomedical research has decreased by over 20% since 2003, and it shows no sign of increasing any time soon. Your support is critical to help support the skilled young scientists in my lab and to keep the lab afloat,” he says.

• HHF awarded ten Emerging Research Grants (ERGs) to innovative scientists in the areas of Central Auditory Processing Disorder (CAPD), Hyperacusis, Ménière’s Disease, and Tinnitus. Learn more about what they are doing with their research grants.

• See if your name made the donor list. Didn’t see your name...make a gift by Sept 30, 2016, to be listed in fiscal year 2016’s annual report.

• Keep your eye (or ear!) out for hearing-related facts and statistics.

Get all the details in the full report here. We are excited by our progress over the past year and hope you enjoy reading it. As always, have any questions, please email us at info@hhf.org!

Please consider making a gift today so we can continue to carry out our mission and find a cure for hearing loss and tinnitus.

YOU ARE OUR HOPE.

HHF Achieves Accreditation From BBB Wise Giving Alliance

By Morgan Leppla

Accountable, transparent, responsive, and enterprising. 

It takes a resolute organization to embody these traits. While we believe that has been the case since Hearing Health Foundation’s inception in 1958, we now have Better Business Bureau Wise Giving Alliance (BBB WGA) accreditation to prove it!

The BBB WGA evaluates charities based off of 20 holistic standards that include scrutinizing financial transparency and planning, internal governance, effectiveness measurements, and fundraising disclosure practices and accuracy. Check out our profile at Give.org today!

We also recently received a Platinum rating from Guidestar, which is the highest rating available. This rating signifies that HHF yields measurable results using self-defined metrics that reveal much more than oversimplified financial ratios.

But why should this matter to you?

Because these 3rd party ratings show we achieve our mission, responsibly!  

“The public can be assured that every charity evaluation is completed with careful, objective analysis of charity information,” says Art Taylor, president and CEO of the BBB Wise Giving Alliance. “

The more we become deserving of your trust, the better the prospects for curing and preventing hearing loss and tinnitus. More than 80 cents of every dollar goes to funding programs and research, meaning we have the capacity to to enact the changes we promise.

While the BBB seal of approval verifies the standards of our operating procedures described above, our commitment to quality is motivated by a much greater force. It is traceable to our mission and core values, which structure the ways we act and choices we make. Accountability to our constituents and stakeholders is crucial to upstanding practices, and without it we would not be HHF. 

Please consider making a gift today so we can continue to carry out our mission and find a cure for hearing loss and tinnitus. 

YOU ARE OUR HOPE.

7-Day Challenge for Better Hearing Health

By Maggie Niu

In honor of National Public Health Week kicking off April 4, Hearing Health Foundation has seven challenges for you to complete over the course of next week, all related to hearing loss and hearing prevention. Help us celebrate by completing our list of challenges below and sharing your experiences in with us in the comments.

On your mark… get set…GO!

Day 1: Make an appointment to get your hearing tested!

It is important to have your ears tested at least once a year, especially if you are experiencing any buzzing or ringing in your ears or unable to hear clearly. Don’t hesitate to make an appointment: Early intervention is key for preventing further damage.

Here is a directory for audiologists from the Academy of Doctors of Audiology. It is super-easy and quick to find an audiologist close to you. Simply type in your zip code and the radius you are willing to travel and bing, you have your list of audiologists.

Day 2: Reduce the volume on personal music devices to under 70% of the maximum.

We all know that unwanted noise is a nuisance so we try everything in our power to drown it out—either by turning up the volume of the music we're listening to, or talking louder. In the long run, does it benefit our hearing health? The answer is no.

Noise-induced hearing loss can occur gradually over time by listening to loud music or being exposed to loud environmental noises. We can’t always control ambient noise, but we can control personal earphone volume. Next time you are using your earphones on a high volume, remember that you are damaging your ears!

Day 3: Plan a fundraiser to help us find a cure for hearing loss and tinnitus.

Need some ideas? See examples of past events and ideas for creating your own event. Individuals, companies, organizations, sororities, and fraternities of all sizes have joined in our efforts, and we hope you will too!

Day 4: Keep a journal of the foods you eat and note the loudness of the environment you’re in. You may be surprised at what you find.

Noise can affect many things. It can cause stress and affect our mood, but would you believe that noise can affect your palate? A Cornell University study found, "…that in an environment of loud noise, our sense of taste is compromised. Interestingly, this was specific to sweet and umami tastes, with sweet taste inhibited and umami taste significantly enhanced," said Robin Dando, an assistant professor of food science. "The multisensory properties of the environment where we consume our food can alter our perception of the foods we eat."

Day 5: Eat this! Incorporate certain nutrients into your diet for optimal hearing health.

Now we know that noise can affect the taste of food we eat, but are there foods that can help our ears? Check out these five nutrients that can prevent or delay hearing loss. 

• Omega-3 fatty acids and vitamin D: Usually found in fish, both can have positive effects on hearing loss. Studies have shown that adults who ate fish twice a week had a 42% lower chance of facing age-related hearing loss than non-fish eaters.

  • Recipe idea: Grilled Salmon and Zucchini with Red Pepper Sauce
    

• Antioxidants and folic acid: You can find this in spinach, beans, broccoli, asparagus, eggs, nuts and liver. They can reduce the number of free radicals in your body, which can damage the nerve tissue in your ears.

  • Recipe idea: Skinny Taco Stuffed Peppers.
    

• Magnesium and potassium: Bananas, potatoes, artichokes, and broccoli are rich in magnesium and potassium. Magnesium can protect you from noise-induced hearing loss. Potassium is responsible for regulating the amount of fluid in your body.

  • Recipe idea: Creamy Garlic Pasta with Shrimp and Vegetables.
    

• Zinc: Zinc can be found in dark chocolate and oysters. It is important to include zinc because it boosts the body’s immune system and is responsible for warding off germs that cause the common cold and ear infections.

  • Recipe idea: Baked Oysters with Wild Mushroom Ragout.
    

• Vitamins C and E and glutathione: Vitamin C and E can increase your overall health by reducing the chance of getting an ear infection. Vitamins C and E can be found in vegetables and in fruit. Glutathione is made naturally by the liver and is found in fruits, vegetables, and meat.

  • Recipe idea: Pomodoro Pasta with White Beans and Olives.

Day 6: Use everyday technology to enhance your hearing health. 

Take control of your hearing health with the technology you use daily: download a sound level meter on your smartphone or tablet to measure the decibel levels. In our Winter 2015 Hearing Health magazine, we listed apps that were vetted by the National Institute for Occupational Safety and Health, and they include: NoiSee by Noise Lab ($1), Noise Hunter by Inter•net2day ($6), and SoundMeter by Faber Acoustical ($20). These apps were cited as providing the most accurate A-weighted sound level measurements.

Other apps include: The Jacoti ListenApp, where you can test your hearing via earphones, and the LesserSound App, which allows the user to take sound readings and record the location from where the noise was recorded. 

Day 7: Share your story!

Share your story about living with hearing loss, tinnitus, or other hearing conditions and how it has affected you via our online scrapbook, blog, or magazine. Inspire others who are touched by similar conditions so that we can help raise awareness about the prevalence of hearing loss and other hearing disorders as well as our research to find better treatments, therapies, and ultimately a cure.

You can share your story by emailing us at info@hhf.org. It can be on ANYTHING related to hearing loss, tinnitus, or other hearing related conditions, such as funny stories, personal experiences, tips for our readers, or hearing health. If you would like to contribute but find that you're having writer's block, email us anyway! We're HEAR to get you through it! (Pun intended.) 

These are just some tips and advice that can help your hearing and the broader hearing health community. For any additional questions please contact your audiologist, email us at info@hhf.org, or visit our website.

Tell Us Your Tips!

By Yishane Lee

Here, at HHF, we're working on Hearing Health’s Spring issue and our theme is…..drum roll please.….“Living Better With Hearing Loss.” We’d like to include expertise and advice from YOU, our readers, because who's better than you to give your insights and experiences with living with hearing loss?

We truly appreciate your time and help with any of the questions below! Please respond in the comments section, email us at editor@hearinghealthmag.com, or provide your answers via this survey, here.

• What are your best hearing aid tips? For example, do you have a trick to maximize battery life? Or a foolproof way to make sure you never misplace your devices?
  

• Have you ever accidentally gotten your hearing aid wet? What did you do? Did it work?
  

• What steps do you take to hear better in a noisy setting? Do you use your hearing aids combined with certain assistive devices?
  

• Do you have tinnitus? How do you cope with it? Does your hearing aid have a tinnitus setting, do you use white noise, or something else?
  

• What have you learned about yourself or your family after being diagnosed with hearing loss?
  

• Are you the parent of a child with hearing loss? What advice do you have for parents getting a diagnosis of hearing loss for their child?
  

• Are you an adult with hearing loss? What is advice you would tell your younger self, or the parents of your younger self?
  

• What is your go-to accessory or assistive listening device? A mini mic? A neck loop? Earplugs?
  

• Do you protect your hearing in noisy settings? What steps do you take?
  

• Have you ever had a scary situation where you could not hear?
  

• Do you tell people about your hearing loss as soon as you meet them, or do you wait till later? Or do you let them figure it out themselves? Tell us why.
  

• If you could design the perfect hearing aid, what would it include?

Thank you for sharing your experiences living with
hearing loss and tinnitus with us. 

Please subscribe here to receive a FREE copy Hearing Health magazine! 

Interested in sharing your story ? Email us today!

Spotlight On: Stefan Heller, Ph.D.

By Stefan Heller, Ph.D.

CURRENT INSTITUTION: 

Stanford University

EDUCATION:

Studied Biology at the University of Mainz, Germany

Ph.D. at the Max Planck Institute for Brain Research in Frankfurt, Germany

Postdoc at The Rockefeller University, New York, NY

We are grateful for your interest in Hearing Health Foundation (HHF). Through Spotlight On, HHF aims to connect our supporters and constituents to its Hearing Restoration Project (HRP) consortium researchers. We hope this feature helps you get to know the life and work of the leading researchers working collaboratively in pursuit of a cure for hearing loss and tinnitus

What is your area of focus? 

My laboratory seeks to understand how a small patch of embryonic cells forms the inner ear, particularly the sensory hair cells of the cochlea and vestibular organs. We are also very interested in the biology of supporting cells, which in chickens have the ability to regenerate lost hair cells. Another research interest of ours is the use of stem cells to generate inner ear cells “from scratch.”

Why did you decide to pursue scientific research? 

As a kid, I convinced my parents to buy me a chemistry lab kit. On numerous occasions the basement needed to be evacuated because of nasty fumes that filled the room. This experience probably gave me an edge when studying science in school, where I had encouraging teachers who inspired interest in neuroscience and genetics. I realized that science provides an endless playing field to connect basic discoveries to the development of useful applications.

Why hearing research? 

Serendipity! My Ph.D. thesis focused on how nerve cells are affected by so-called neurotrophic factors. This field of research was popular in the early 1990s because it promised to lead to cures for disorders such as ALS, Parkinson’s, and Alzheimer’s. With many researchers already working on finding cures for these conditions, I believed a cure was right around the corner and I’d be out of a job quickly. So I looked for a new challenge and found the laboratory of Jim Hudspeth, an HHF Emerging Research Grantee in 1979 and 1980, whose research focuses on inner ear hair cells. Five minutes with Jim and I was hooked.

What do you enjoy doing when not in the lab?

I enjoy renovating our family’s 65-year-old midcentury modern house one step at a time. After 10 years, I am about half done. I also enjoy camping trips with my wife and dog; we like hiking and being off the grid to recharge our batteries.

If you weren’t a scientist, what would you have done?

I’ve always felt that research is the best fit for me. I like modern architecture, and although I am not necessarily talented in drawing, I might have liked to do something in that field.

What do you find to be most inspirational?

Interacting with creative people and living in the Bay Area, a region where innovation is cherished and rewarded. All of my mentors have one important trait in common, and that is generosity. They were generous in volunteering their time to discuss wild ideas and scientific problems, giving me resources to explore and experiment. I try to apply this principle to my laboratory group as well.

Hearing Restoration Project

What has been a highlight from the HRP consortium collaboration?

The most valuable aspect of the HRP is that we get together as a group and talk about experiments, approaches, and the problems at hand. There are not many researchers focusing on hearing restoration, so bringing them together frequently is very helpful. We meet twice a year in person and once a month via conference calls, which is optimal for fruitful discussions. Having unlimited access to this talented group brings a lot of value.

How has the collaborative effort helped your research?

Without the HRP, I would not have started to focus on chicken hair cell regeneration. The collaborative approach, made possible through funding from HHF, has helped us to implement novel tools and the latest technology. Combining resources and technologies strengthens our research and expedites projects that help us reach our goal to find a cure for human hearing loss and tinnitus.

What do you hope to have happen with the HRP over the next year? Two years? Five years?

I envision that we will have started to fill in some of these missing components and that we have identified ways to reactivate hair cell regeneration in the mammalian cochlea. I also hope that people connected to the cause, such as individuals living with hearing loss and HHF’s generous supporters, remain patient, because science takes time in order to reach a desired result. We are working on a very complicated problem, and with each new discovery we find new roadblocks that need to be eliminated. I dream of the day when these roadblocks are all gone and we do not encounter new ones. This will be the day we realistically can expect a cure.

What is needed to help make HRP goals happen?

Ongoing funding. HHF is currently supporting research projects at a dozen laboratories, and increased funding per laboratory would allow for even more research to be conducted. HRP researchers benefit from sharing knowledge and small collaborations, but I feel that large-scale concerted efforts and sustained funding are essential to make the HRP’s goals a reality. Hopefully one of the currently funded, small-scale, concerted collaborations will lead to a “eureka” moment that will allow us to leapfrog directly to testing new drugs. Finally, patience is a must! Combined, all of the laboratories working on finding cures for hearing loss and tinnitus totals fewer than 500 researchers worldwide. It is a small field with limited resources, but I am very encouraged about the progress we’ve made so far.

Empower the Hearing Restoration Project's life-changing research. If you are able, please make a contribution today.

Promoting Research to Improve Hearing Health - Seven Questions - ARMY Magazine - Dec 2015

Promoting Research to Improve Hearing Health

ClaireSchultzistheCEOofHearing Health Foundation (HHF), a 501(c)(3) tax- exempt organization committed to ensuring the public—especially service members, veterans and their families—have the opportunity to enjoy life without hearingloss and tinnitus.

1. What is Hearing Health Foundation’s mission?
   
   HHF’s mission is to prevent and cure hearing loss and tinnitus through groundbreaking research, and to promotehearing health. Through our Hearing Restoration Project, we are working on a biological cure for hearing loss and tinnitus for millions of Americans—including hundreds of thousands of military service members and veterans.
   

2. What military-specific initiatives has HHF worked on?
   
   In 2012, we joined the DoD’s Hearing Center of Excellence as a partner through general outreach, radio programs and co-authored articles. We share many of the same goals in raising awareness, providing resources and information, and continually improving the health and quality of life of service members and veterans.
   
   In 2014, HHF launched an online campaign geared toward veterans to provide information and resources about tinnitus treatments and the Hearing Restoration Project’s efforts, and including links to expert content in our magazine and to other hearing and veteran-related organizations and associations. [Visit http://hearinghealthfoundation.org/veterans.]
   
   Pharmaceutical intervention for hearing loss is a major research area for the military.
   

3. Some military members feel hesitant about seeking treatment for hearing-related issues. What does HHF do to mitigate that stigma?
   
   Service members may feel stigmatized about seeking treatment for their hearing problems because there are many myths and misconceptions about people with hearing loss. At HHF, we provide factual information as well as resources to help reduce the stigma of hearing loss, and to encourage getting treatment as soon as possible.
   

4. Do many service members regard hearing loss as a “badge of honor”?
   
   HHF has not heard this sentiment, but it is our hope that members of the military take every effort to prevent hearing loss while in the service, and to address any hearing issues they may have developed as soon as they are discovered. Untreated hearing loss can lead to many additional medical problems; for example, depression, isolation and dementia.
   

5. Are more Iraq and Afghanistan veterans seeking hearing loss treatment?
   
   At least 60 percent of troops returning from Iraq and Afghanistanhave acquired hearing loss or tinnitus because of noise exposure during their service. According to the Hearing Center of Excellence, in the past decade, 840,000 service members have been diagnosed with tinnitus, and just over 700,000 have hearing loss.
   

6. What are the most effective treatment options?
   
   Current treatments include hearing aids, cochlear implants and other devices. Treatments available for tinnitus include sound therapy, drug therapy, psychological interventions, brain stimulation and tinnitus retraining therapy, which is being tested through clinical trials at six flagship military treatment centers.
   
   A sequential program known as progressive tinnitus management has emerged as one of the most promising research-based methods. In order to help patients, it is necessary to mitigate the functional effects of tinnitus, such as difficulties with sleep, concentration and relaxation.
   

7. How can service members prevent hearing loss?

Traditional earplugs are effective in preventing hazardous noise from entering the ear canal, but they can interfere with speech communication or low-level combat sounds. Level-dependent earplugs have a small filter that enables soft noises to be conveyed with full strength while eliminating high-frequency or impulse noise.

Earmuffs are another option. … They provide greater attenuation than earplugs [but] make it harder to pick up the softer sounds that may be necessary for verbal communication. An electronic communication system in the earmuff allows wearers to communicate clearly with each other.

Noise-attenuating helmets should be used by military personnel operating combat vehicles or aircraft. These helmets protect the wearer from hearing loss, crash impact and eye injuries while also increasing communication ability through a radio communication piece.
Technologically advanced helmets include an active noise-reducing technology that monitors the sound energy around the ear and cancels any unwanted noise while preserving verbal communications. A communications earplug with a microphone can be worn in addition to the helmet for high-quality verbal clarity.

—Thomas B. Spincic

Do You Hear That?

By Kailey McGarvey

Do you hear that?

Imagine hearing a high-pitched noise, constantly, throughout the day and night. It follows you everywhere. Silence is a luxury that does not exist.

This is tinnitus.

In 2011, I developed tinnitus in my right ear, after a head cold. I vaguely noticed it, and thought it was something that would go away after my body had fully recovered. After a few months, my doctor told me I was completely healthy. But why was I still hearing that annoying sound?

At this point, the ringing in my ear was so faint that I could only hear it in complete silence. It was just a mere annoyance that could be easily covered up by any other sound, so I didn’t take it too seriously. I had some ENT and neurological tests done just to be sure that the tinnitus wasn’t a symptom for something bigger, which it wasn’t. So it was never more than a mild concern—until I woke up one morning in 2013 with an even higher pitch ringing in my left ear.

This was solid proof that something was happening and that it had the potential to worsen. I went through a second round of ENT and neurological testing to check for new developments. The ringing had become louder and took more effort to ignore. Again, the tests showed nothing abnormal. This was good, but I was told nothing could be done about the distracting sounds in my ears.

My tinnitus began to consume a greater amount of my focus, my energy, and my thoughts. My anxiety skyrocketed with thoughts of how it could progress and what it would mean for me in the future.

During the summer of 2015, my tinnitus worsened, again. Listening to music is one of my favorite pastimes, but now I hear sounds of high-pitched feedback during certain chords in songs. This is particularly devastating—my tinnitus has distorted how I hear music. It was then that I made a decision: Since throwing my energy into finding answers from doctors was obviously not proving productive, what would be a better outlet?

After some brainstorming, I decided that my “outlet” would be fundraising for tinnitus. I have always been involved in community outreach, and have been working as a finance assistant for a congressman. This would be my opportunity to manage my own fundraiser, while raising funds for a cause very important to me. With my recent move to Long Beach, New York, I had access to a beautiful boardwalk. I decided the fundraiser would start in my back yard with snacks and drinks, and once everyone arrived we would walk the boardwalk.

I chose Hearing Health Foundation (HHF) because their focus is on research. Research is where we will find answers about hearing loss and tinnitus; research is what will move things along. We are so close to finding answers. Since tinnitus is an invisible condition and it does not directly affect your health, it has historically not been taken seriously, but it is (slowly) becoming a “mainstream” condition. I hope this will lead to more people taking an interest in funding tinnitus-focused research, such as the science that HHF is funding. Greater funding will help accelerate the pace toward a cure.

I was lucky—the Saturday of the fundraiser was a beautiful and warm October afternoon. I had set a goal of $1,000 and asked for $35 per person. Those who couldn’t make the fundraiser were asked to donate online. I ended up with 23 people in attendance and $1,120 in contributions. It ended up just being a fun social gathering of family and friends. Dollars for Decibels was a success! Not only was I able to raise money for the organization, but the fundraiser itself reinforced the extraordinary support system I am grateful to have around me.

In addition to fundraising, I can also use my time to educate others and help the tinnitus community as a whole, rather than just trying to find answers for myself. It is important to educate the younger generation about the harmfulness of noise. Hearing conditions and hearing loss are seen as “problems for old people”—but this simply isn’t true. Hearing loss and tinnitus can begin at a young age and when the cause is excessive noise, it is entirely preventable. I was just 20 when my hearing became noticeably affected.

It is tempting to search endlessly for some sort of miracle drug, or to feel discouraged when nothing seems to work. But remember that everybody has some issue, and if (loud) ringing in your ears is your biggest problem, perhaps you are lucky. There is no operation or amount of medicine that can provide the same relief as the support and love of friends and family.

The outreach and education among my friends is working. Just last week, one friend decided that we shouldn’t go to a certain bar because it is always “way too loud.”

Tinnitus and hearing loss can be debilitating. Still, as with all chronic conditions, there are good days and there are bad days, but there are always good days ahead.

Interested in hosting a fundraising event to benefit HHF?  

You're in luck! You can create a  giving page and help us raise funds to cure hearing loss and tinnitus.

Need some ideas?  See examples of past events and ideas for creating an event. There are many different ways to create your own fundraising event from golf outings and bake sales, to birthdays and weddings, to marathons and triathlons. Let your talents and interests lead you to your own fundraiser for HHF! No event is too large or small.

In three easy steps, you will be on your way:

1. Register

2. Create your Giving Page

3. Share with Family and Friends and ask for their support

Get Started!

Have questions or need help setting up your fundraiser?  Email fundraise@hhf.org or call (212) 257-6140.

#HearTheHope This Holiday Season

By Laura Friedman

#GivingTuesday 2015, an international day of giving that kicks off the holiday giving season, is just around the corner on December 1st.

Hearing Health Foundation (HHF) wants to thank you for your continued support of our mission and programs, such as the Hearing Restoration Project (HRP) and Emerging Research Grants (ERG). Your support matters and has, and will continue to, enhance the lives of millions of Americans. Here are some of our successes, dating back to our founding in 1958:

• HHF is the largest private funder of hearing research in the U.S.

• HHF funded research has led to:

  • The development of cochlear implants

  • Treatments for otosclerosis (abnormal bone growth in the ear) and ear infections.

• In 1985, scientists funded through the ERG program discovered that chickens regenerate their inner ear hair cells after damage and mammals do not. This study led to the development of the HRP in 2011.

• In the 1990s HHF advocated for Universal Newborn Hearing Screening legislation, to detect hearing loss at birth.

  • Today, 97% of newborns are tested (up from 4% in 1994).

The work doesn't stop there. Your support will continue to impact the course of hearing and balance science and help us find a cure for the 50 million Americans living with hearing loss and tinnitus. The question of finding a cure for hearing loss is not if, but when. Making a financial commitment to HHF is an investment in our future. But we need YOUR help. Here are some ways you can #HearTheHope this holiday season:

• Make a donation to HHF in honor or in memory of someone close to you.

• Post on social media, such as Facebook or Twitter, encouraging your friends to donate to HHF.

  • The average person has 300 friends on Facebook which means that if each of your friends donates just $1 on Giving Tuesday, you can raise $300 in one day—it’s that easy!

• Contribute to an item on our Wish List and give our researchers the tools they need.

• You can make gifts of appreciated stocks or a planned gift!

• Let your talents and interests lead you to your own fundraiser for HHF through our website! No event is too large or small. Here are some ideas for inspiration:

  • Host a potluck and invite your guest to join you by bringing a dish and making a donation to HHF.

  • Hold a bake sale or golf outing and advertise that the proceeds will be donated to HHF.

  • Burn excess Thanksgiving calories and go for a run, swim (indoors of course!), or bike ride, fundraising for every mile accomplished.

Have other ideas or questions for us? E-mail us at Development@hhf.org.

Any donation you send before December 31st will be instantly doubled thanks to a generous matching gift from one of our supporters with hearing loss — and you will make twice the IMPACT!